Growing International Support Together
With your help we can work to ensure that every community around the world has access to free diagnosis, helpful information and local support.
BUILDING A GLOBAL SUPPORT NETWORK
IPWSO provides information, guidance and support to enable better access to diagnosis, care and treatment wherever you are in the world.
What is PWS?
Prader-Willi syndrome is a multi-faceted and genetically-determined syndrome. The two main genetic causes and other rarer cause of PWS, all involving chromosome 15, give rise to a pattern of atypical early development. This is characterised by extreme floppiness and failure to thrive at birth with the subsequent emergence of severe over-eating and the risk of severe obesity if access to food is not controlled. There may also be other difficult behaviours, the presence of learning disabilities, hormonal deficiencies and specific physical characteristics. With knowledge and careful management and support the person with PWS can live a happy and well-adjusted life within the parameters of the syndrome.
Want to get involved?
Here at IPWSO we are working to ensure that people with Prader-Willi syndrome and their families have access to information, treatment and quality services and are integrated into their communities around the world. If you need support of any kind, would like your association to become a member, attend a conference or would like any further information please contact us.